The LEARN Lab is proud to have received a research grant from the Moebius Syndrome Foundation to study language and communication in young children with Moebius. This study will help us understand (1) how best to assess young children’s communication and language skills and (2) the patterns of language and communication development in Moebius from ages 2-6. For example, many parents wonder at what age children with Moebius say their first word or reach other milestones; this study will help us know more!
We will begin enrolling families later in 2025. If you are interested in being in the study, please email LEARNlab@northwestern.edu with subject “Moebius study” or check back here for updates!