The LEARN Lab is proud to have received a research grant from the Moebius Syndrome Foundation to study language and communication in young children with Moebius. This study will help us understand (1) how best to adapt measures to accurately assess young children’s communication and language skills and (2) the patterns of language and communication development in Moebius from ages 2-6. For example, many parents wonder at what age most children with Moebius say their first word or reach other milestones and how fast their language abilities grow over time; this study will help us know more! Check back here for updates!
If you are interested in being in the study, please complete the corresponding survey below.
Family study for children age 2-6 with Moebius and their caregiver (4 zoom sessions over 6 months, starting later in 2025)
https://forms.office.com/r/pZa4CsrEhw
Assessment review panel for caregivers and professionals familiar with Moebius (1-2 zoom meetings in late summer/early fall 2025)
https://forms.office.com/r/7PLt8QD5vw
You can always email LEARNlab@northwestern.edu with subject “Moebius study” with any questions.